What I’m Up To
Dad has always wanted grandkids. He looked forward to the day to teach them how to catch frogs, throw a baseball, spin them in a cardboard box (we actually did this as kids and we never laughed so hard!), take to Disney World, and do all the things a grampa wants to do.
It was devastating the day he was diagnosed with ALS, May 15, 2013. Within months he couldn’t speak, use his arms, his legs, and was bound to a wheelchair. Our family has been grieving, yet growing closer to the Lord all at the same time through this heartache.
I don’t know about you, when it comes to nearing the end of my life, I don’t want to be known for how I died; but to be known for how I lived.
With that being said, we are accepting stories of Dad’s legacy of the life he has lived and is still living. Although he can’t lift a finger, his faith moves more than mountains. These stories and legacies will be illustrated in a children’s book for generations to come. This is where we need your help.
My prayer is for him to be able to see the very pages of his own legacy. To see how we all truly remember how he lived and how he loved. From being known as the “Forklift” at the hospital, lifting all the heaviest patients. The rattlesnake hunter as a teen, Elvis impersonations, weddings and graduation parties he provided music and was the emcee. From the times he sang on national television, at church, and at fairs. The way he comforted the fearful before surgery. How do you know and remember Mike Bailey SR?
Someday the grandkids he has always wanted, will get to know him through his legacy.
What legacy has he left with you?
It will be expensive to hire an illustrator, so we will choose the best 15 or 20 to show his grandkids someday. Please share your stories and memories in the comments below for consideration of being illustrated in the book for generations to come!
We are thankful for you, thank you for loving our family as we trek and grieve this ugly disease…. but through a faith that has become even more beautiful to us.
The day he was diagnosed, his speech was already slurred and managed to speak the words, “God is fair, but life is not.”
This past weekend, he used his eye gazer where the gaze of his eyes can click one letter at a time and speak for him. He said,
“God is always fair, but life is not. He wants us to trust him and not try to understand.”