Dad with ALS

Aiming to compete on national NPC figure stages this summer has been prioritized to choose a later date. My dad is the man that carried me like a baby little over two years ago when I was wheelchair bound for months, with both legs in casts, and now he can barely walk or feed himself.

This has been a heart wrenching process to see him age 20 years in less than six months. The past few months have been full of scares about my healthy dad that has suddenly taken falls, both arms moved slowly and weak, -while speech slurred. He didn’t feel urgent to have further tests while his symptoms continued to get worse. I listened to mom crying on the phone watching her best friend and husband of 34 years this May 26, show these signs.

After much persuasion from family and pastor, he finally went in to see doctors and wait weeks for multiple tests. We finally received the horrific diagnosis of an incurable disease, ALS. It’s also called Lou Gerhigs Disease.

I remember being a little girl and talking to dad about that. Saying that’s the one way he’d hate to go, as your brain would be completely aware of what was going on as you became paralyzed, unable to do anything. Wednesday we meet with ALS Clinic in Cleveland, Ohio to learn how to cope and what is next. It’s time for our family to really work as a team. Life is so short and moments are precious, we need to make the most of all of them.

Amazed as his church community of over 20 years, and co-workers from Robinson Memorial Hospital of 30 years are all an army waiting to help in any way. Never needed community more than we do now. Co-workers have blessed us beyond belief while trying to plan his retirement party, with a benefit dinner, and raffle, they offered to take care of it! Their love and support left our family speechless. We are now looking for venues in Ravenna, Ohio to hold the event to celebrate and honor a man that has only been loved by anyone who has known him. I’m proud to say he is my dad.

It is our faith that keeps us lifted through all these scary emotions, while trusting God through a painful process. We are currently enjoying time together as a family visiting The Creation Museum. Thank you Jason for your generous gift of free passes to have this time at dads favorite place!

If any businesses or individuals would like to donate monies or services to raffle in Ravenna, Ohio, please contact me. Thank you so much and God bless.

As for my fitness followers, I am still committed to following my diet from John Meadows of mountaindogdiet.com and training three days a week with friend and trainer Drew Mossman from Shape Fitness, Healthy Outlook Worldwide and the downtown Columbus location.

Definition of ALS from http://www.alsa.org/about-als/what-is-als.html is below:

Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

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2 thoughts on “Dad with ALS

  1. i will remenber to pray for your dad and you and the whole family. I can’t believe how God is taking you through another crises. your Dad is fortunate to know the Lord and to have you to help him through this fight. I dont know hw anyone could face this on there own

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